Executive Director

Mesothelioma Applied Research Foundation

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Job Summary

FOUNDATION OVERVIEW The Mesothelioma Applied Research Foundation (Meso Foundation) is the nonprofit collaboration of patients and families, physicians, advocates, and researchers dedicated to eradicating the life-ending and vicious effects of mesothelioma. We offer medical information, hope, and support to mesothelioma patients and families, fund the highest quality and most promising research projects from around the world, raise awareness of the disease, and advocate that the public and private sectors partner in the effort to cure it. 

OUR MISSION: The Mesothelioma Applied Research Foundation is the nonprofit collaboration of patients and families, physicians, advocates, and researchers dedicated to eradicating the life-ending and vicious effects of mesothelioma. We believe in a cure for meso. Given the human toll of suffering the disease causes, the compassion and energy of the meso community, the moral, legal, and economic aspects of asbestos, and the benefits of meso research to cancer research generally, we believe that the resources to accomplish this cure are available and must be mobilized. We seek to marshal and utilize these resources responsibly, as effectively as possible, with financial transparency and by adhering to health policy guidelines that foster ethical clinical and administrative practices, and ethical decision-making to: 

• Offer hope and support to patients and families by educating them on the disease, helping them to obtain the most up-to-date information on treatment options and to connect with meso treatment specialists, and providing them assistance, emotional support, and community with others; 
• Fund the highest quality and most promising meso research projects from around the world through rigorous peer review; and 
• Raise awareness of meso, and advocate that the public and private sectors partner in the effort to cure it by directing the resources needed to stop this global tragedy. 

POSITION: Executive Director The Executive Director position with the Meso Foundation is a full-time, exempt role. The Executive Director reports directly to the Board of Directors and is responsible for the management and executive leadership of a five-member, remote staff team. The ideal candidate will have the capacity to cast a bold vision for what’s possible in the Meso Foundation’s next phase. They will have a passion for sharing the Meso Foundation’s mission and vision, using data and evidence-based campaigns to support the growth and success of the organization.

Job Responsibilities

ESSENTIAL DUTIES AND RESPONSIBILITIES

Strategic Leadership and Organizational Management 

• Ensure that the activities of the Meso Foundation are in support of its mission, in alignment with its policies, and make progress towards its long-range strategies. 
• Along with the Board of Directors, create and execute a mission-centric organizational strategic plan to direct the activities of the foundation. 
• Facilitate the development and approval of an annual budget to meet the needs of the organization. 
• Provide leadership on all human resource matters for Foundation staff, including the availability of professional development, establishment of organizational culture and teambuilding, and oversight of all available benefits, policies, and evaluation systems.

Board Governance 

• Develop and sustain strong working relationships with each member of the Foundation’s Board of Directors. 
• Work with the designated officer(s) on the Board of Directors to maintain a pipeline of prospective new board candidates. 
• Provide timely reports to the Foundation’s Board of Directors about the organization’s activities. 
• Ensure the Board of Directors complies with organizational by-laws.

Fundraising and Network-Building 

• Ensure the Foundation’s annual revenue goals are achieved through sustainable income sources. 
• Identify potential donors and prepare them for contact with the fundraising/development team. 
• Cultivate personal relationships with patients and families to build the meso community and cultivate individuals with personal connections to the mission to become major gift donors and volunteers. 
• Serve as the external face and most public champion of the Meso Foundation for a wide range of stakeholders, paying special attention to the reputation and integrity of the organization and its work. 
• Facilitate the process for patients and caregivers to transition to volunteers and advocates. 
• Cultivate relationships with doctors, nurses, and social workers, making sure that all people engaging with and treating mesothelioma patients are aware of the Meso Foundation and utilizing its programs and services.

Communications: 

• Maintain an understanding of the Meso community, its constituents, and their needs; Spearhead the evaluation of current offerings and enlist new aspects and/or innovative program updates to best serve our medical and patient support efforts. 
• Develop a vision for the organization’s communication strategy; In partnership with staff, ensure the development of the content of the newsletter, website, symposium, solicitations, etc. supports that vision.

Leadership for Advocacy, Grants, and the Science Community 

• Communicate regularly, one-on-one and collectively, with doctors and researchers, especially those on the Foundation’s Board of Directors, Science Advisory Board, and/or those who have received grant funding from the Foundation. 
• Ensure the Foundation maintains a reputation of being the go-to source for resources and provides access to the most current events and news in meso science and treatment through its digital media platforms. 
• Provide executive leadership for the Foundation’s research grant program and provide appropriate oversight to ensure that it remains a peer-reviewed program. 
• Lead advocacy efforts on state and federal levels by leading efforts to cultivate relationships with lawmakers and other governmental representatives and maintaining knowledge about bills that are relevant to the meso community. 

Qualifications

REQUIREMENTS & QUALIFICATIONS 

• 3-5 years of experience in an executive leadership role, preferably in a health-related organization. 
• A leadership style that is collaborative, inclusive, transparent, and decisive. 
• Understanding of research grantmaking procedures to ensure the integrity of process and stewardship. 
• Demonstrated success working and managing a staff team in a work-from-home, remote environment. 
• Excellent interpersonal skills; strong oral and written communication and the ability to move comfortably in public forums and present the Foundation’s vision and mission to diverse audiences. 
• Successful fundraising experience with financial management, budget development, and nonprofit fundraising. 
• Strong understanding of nonprofit administration including board development and management. 
• Passion for the mission of the organization and the medical community serving patients and families affected by Mesothelioma. 

Additional Information

Benefits

How to Apply

If this opportunity excites you, email a resumé and cover letter expanding on your interest and qualifications to MesoFoundationCareers@gmail.com. Applications received by Friday, April 19 will be considered. No calls or in-person application submissions.

Details

• Date Posted: March 26, 2024
• Type: Full-Time
• Job Function: Executive Leadership
• Service Area: Social / Human Services
• Salary Range: Annual salary is $145,000